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I was also a patient at Burzynski Clinic in July this year. I have stage 1v colon or ovarian cancer. Their path lab said the results were inconclusive. Strange two people who were there at the same time I was had inconclusive results also. They were the only other patients I talked to about the results. I spent three weeks in Texas at my own expense of course. Spent 35,000 at Burzynski Clinic and 4,500 more a month for sodium phenylbutyrate. This is the drug they give you to fight your cancer. As far as I can tell this is the drug given to all the patients. As soon as you pay up of course. This is the only drug I recieved from Burzynski as his targeted therapy. As far as gene testing that’s still a mystery to me.I was put on sodium phenylbutrate [working up to 3,000 mg 4 times a day 2 hrs apart with food] and chemo before any testing was done. I could of had chemo here at home and save the trip, time and money. Two other oncologist had already given me that option. One of the chemo drugs I am taking is Zeloda $3,500 at Burzynski for a 2 week supply $1,400 from other pharmacy’s. Spent $400 to talk to their nutritionist got the same info I could have gotten for free on the internet. In short it is to keep the acid level down and the alkaline level up. Their aminocare is something they suggest to all patients also. A list of it’s ingredient are on the aminocare site, or you can buy it on the internet. As far as their success rates who knows when you are on both their methods and chemo which one shrunk the tumor? Wishing both you and your wife well. GOD BLESS
hello, wanda.
what you’re saying matches what i saw and experienced when we went down there. i am not saying nobody gets the antineoplastons. i think it is hard to reach the point where they put you in the trials. i do believe they work. i do believe he’s a genius.
but, when it comes to the money thing and their business practices… well, they’re a little sketchy. hell, they’re really sketchy. they collect your money fast, but stall like crazy when it comes to getting insurance overages back to you. at least, that’s been my experience so far.
guess they figure you’ll die before they have to pay you back…
very unfortunate considering the stature of Dr Burzynski.
steve
Bottom line from Burzynski critics: the guy has yet to demonstrate that his drugs work. Regardless of FDA conspiracies and the like, no one knows if the drugs he’s selling actually work. The little data he HAS published were obtained using some very questionable (dishonest?) methods. Conspiracy or not, antineoplastons have not been proven to work in any trial. At $20k-30k per month, I feel his patients are owed evidence of efficacy but Burzynski seems to have perfected the art of convincing his patients that they are owed nothing. I wish you the best, and I hope that whatever you’re doing now is working. However, I also hope that, if you do not improve with the Burzynski “therapies”, that you discontinue them quickly and, even if they do work, share your experiences with your readers. If Burzynski is a fraud, he is the worst kind – preying on the desperation of cancer patients. If he is not, then why has he been so reticent to publish his incredible results?
Matt,
Thank you for your positive wishes and feedback.
I am by nature a very skeptical pharmacist… and before I would post anything on this site you have to know that I have investigated it extensively.
So, let me be quite clear on this topic.
I am not able to get my wife treatment with Dr Burzynski’s antineoplastons – or other medications related to them – because I can’t afford it.
This really pisses me off.
And, I must say that their business practices are probably best described as sketchy.
But I am quite certain Dr Burzynski’s antineoplastons work – at least for some significant number of cancers, and that is something I do not believe I can say for conventional therapies if not augmented by non-traditional concepts.
I can’t help thinking of an article I read that was published by a major Cancer Society.
NOBODY addressed the data that had been presented.
Instead, ALL the reviewers hid behind the fact that they didn’t like the way Dr Burzynski structured his trials and quantified his data.
It was – in my opinion – quite a smear piece with NO redeeming value.
One must ask oneself why this was the case.
I will not tell you why I think it was dealt with in this manner.
I will only say – as a person with extensive engineering, statistical analysis, and process control experience – that the concept of evidence based medicine is one that is situationally invoked to serve the strangest of purposes.
YOU – my readers – should be pissed too!
Thought I would update you on my progress. My first petscan July 12th showed activity at post op site, one to the left of it and two on the liver. Had my second petscan on Oct 12th. This is the summary of that scan. [Minimal residual activity at the dome of the liver, site of previous demonstrated abscess. This may simply represent a sequelae of the previously demonstrated abscess and not a liver metastasis. No other area of of abnormal activity is seen.]
I am hoping that spot is just scar tissue from the drainage tube used to drain the abscess in my liver. And that all the cancer is gone.
These are the treatments I have done since my diagnosis of cancer.
Surgery for blockage.
Sodium phenylbutyrate from Burzynski clinic. I took this less than 3 months as it caused my blood pressure to go dangerously high, and the price is prohibitively high for me. $4,500 a month for pills. I have good insurance but they won’t pay for this, or anyhing else from Burzynski.
I had two IV chemo treatments and three rounds of chemo pills. Will not do any more chemo treatments. They made me extremely ill, and caused other problems with my health. I was told before these treatments they would not cure me but possibly prolong my life. The only reason I consented to chemo was to possibly give me more time to find a treatment that would work. I would not do it again. I believe I would never have lived through the 13 sessions they suggested.
I did a lot of searching the net for natural cures. Almost all the sites stress a whole food or raw food diet. This go’s back to the acid alkaline diet they stressed at Burzynski. They danced all around the PH balance there without ever mentioning PH. In my search on PH balance I came across the phkillscancer site. A story on how Vernon Johnson killed his stage 1v cancer in days by raising his PH level using baking soda and molasses. I decided to give it a try. BE sure if you do this to monitor your PH level several times a day. I used only half the baking soda he did and got my PH up to 8.50 in a matter of days. I kept it there for 7 days. They say that if you can get your PH up to 8.00 and keep it there 5 days it will kill the cancer. I think the reason I only needed half as much baking soda is because I was already sticking closely to the alkaline diet, and the fact I only weighed 90 lb’s. A lot less than Mr.Johnson I am sure.
Of the three treatment I tried I think the Baking Soda, Molasses cure did it. I could feel my body getting stronger, had a lot more energy and had no desire to nap during the day. A nap everyday was a constant for me before this treatment.
For the info on this go to phkillscancer.com.
Another important thing is to think positive. I have to believe that the cancer is gone not just so small it wouldn’t show up on a scan.
Best wishes and good health to you, Wanda
Dear Steve
I am a physician from the West Indies who has recently been researching Burzynski. I truly hope that your wife’s disease remains stable for a long, long time. Cherish and enjoy all your good days as indeed we should all be doing.
Steve, you should not feel any guilt about the fact that you cannot afford Burzynski’s treatment.
The Burzynski’s clinic’s pitch uses the same time honored formulae of all snake oil dealers. More importantly Burzynski’s publications are all in weak journals, in addition the science is week. To follow is my critique of one of his articles on brain stem tumors entitled “Targeted therapy with Antineoplastons A10 and AS2-1 of High Grade, Recurrent and Progressive Brainstem Glioma”.
1. The paper is published in the journal Integrative Cancer Therapies, the web site of which describes it as a “peer-reviewed quarterly journal focused on the scientific understanding of alternative medicine and traditional medicine therapies, and their responsible integration with conventional health care.”. The editorial board of this journal includes Ralph Moss, PhD who has written about Burzynski in his book The Cancer Industry.
2. In the paper both adults and children are included in the same cohort. However it is well documented that the biology of brain stem tumors is very different between adults and children. As emphasized in a paper published last month in the respected journal Neuro-Oncology entitled “treatment of High Grade glioma in children and adolescents”, by Macdonald et al, 13 (10): 1049-1058, it is stated that “Efforts to develop effective therapies for HGGs in children may not be able to rely on progress made with adult high grade gliomas (HGGS). While the histology of HGGs between adults and children appear identical , the biology of the tumors may vary significantly.”
3. Burzynski also includes different types of brain stem tumors in his paper, although the majority are DIPG, exophytic, cervico-medullary and multifocal tumors are also included. The paper “A Clinico-Pathological Reappraisal of Brain Stem Tumor Classification” by Fisher et al from Johns Hopkins (Cancer, Oct, 2000, Vol 89 (7) ) elegantly explains the difference in prognosis between the various brain stem tumors.
4. If one teases out the children under 10 from Burzynski’s paper the overall survival from diagnosis is 11 months. No different from that obtained with radiation therapy.This is in opposition to the overall 5 year survival of 22% that is stated in the paper.
5. The point is that parents of unfortunate children with diffuse pontine glioma could look at this paper and come away with the conclusion that their child could have a 22% chance of survival with antineoplaston treatment.
6. This is intellectual fraud.
In conclusion, I remain unconvinced about the validity of Burzynski’s work.
Maria Bartholomew, MBBS, FRCP
http://boingboing.net/2011/11/28/representative-from-burzynski.html
The only patients who qualify for the Antineoplastons IV are usually brain tumor patients. There is so much publicity about them and very few patients are on them. FDA must approve the patient being placed on them, hence FDA trial. Everyone gets the same meds,otherwise all developed by other pharmaceutical companies..and you will pay at least $35,000 plus..and the chance of the doctor at home working with you is slim to none..there are no peer reviews for prescribing many of the monoclonal antibodies that are prescribed off label. And most patients receive standard chemo which you can get at home.No scientific evidence to show than any of these drugs prescribed off label have any effect on the cancer, these other medications are too new only the pocketbook is affected or rather emptied. I know what I am saying I worked there for years…How could all the patients regardless of the type of cancer all be on the same meds. There was no FDA conspiracies. Someone has been reading too many spy novels. He could not do what he was doing at the time nor could any other doctor in the U.S., and if they were doing what he was doing they would have been hauled to court also. This is a case of someone who is going to come to this country and do whatever they wish and then scream prejudice. Get a reality grip..Why is it that any relative of anyone who worked at the clinic and came down with cancer went to MDA, in the medical center..ask yourself that one?
Matt you really should be doing a lot more reading and checking before making statements like those above.
Perhaps a good start would be the documentary ‘Burzynski’. Made by an independent film producer so any bias is his.
Much documentary evidence. 200,000 pages of notes and patient records seized in a raid by FDA.
Five grand jury trials five acqittals.
Former jurors joining protestors ( cured patients) outside court hearings.
Patients volunteering testimony of support in 2 congressional enquiries.
FDA and NCI admitting they do not question the validity of the antineoplastons.
Phase I & II trial results far superior to the comparator chemo & radiation trials.
How much more do want?
I am merely a very interested sideline observer who wishes to see a cure for this insidious affliction.
Like so many pioneers he is the subject of abuse, ridicule and derision long before judgement is due.
Don from Oz,
Given Maria’s comment, I suppose I should mention that I am a working Ph.D. Biochemist (a real one, unlike Burzynski).
Yes, the movie – I watched it before I made the post you replied to above. No bias? Why don’t you tell me how you know that? In the mean time, the claims made in the movie are questionable. I cannot be more articulate than David Gorski, who addressed this topic quite elegantly in a recent post: http://www.sciencebasedmedicine.org/index.php/stanislaw-burzynski-bad-medicine-a-bad-movie/ Furthermore, infomercials are neither a reliable source for good information, nor the means by which legitimate scientists communicate. Ask yourself then, why was the movie made? Who was its intended audience? Who paid for it?
It doesn’t really matter though. I also read all of Burzynski’s peer-reviewed work. It didn’t take long because there isn’t much. The ONLY work which addresses “antineoplaston” efficacy was published in a 2006 Pediatric Drugs paper. He presented a very small cohort, which surprising since he first reported isolating antineoplastons more than 23 years ago – you’d think he’d accumulated much more data in that time. This doesn’t mean it’s bad science, but his methods are vague, questionable and possibly dishonest. I can go over the specifics of that if you’d like, but I’d like to keep my comment as brief as possible.
I should also mention his clinical trials (http://clinicaltrials.gov/ct2/results?term=antineoplastons&pg=1). Of his 61 clinical trials 60 are Phase II trials, 11 are actively recruiting, one of which is a Phase III trial. No data has been submitted for any trial (withdrawn, active non-recruiting, or active recruiting) to date. A Phase I FDA trial is not a test for efficacy, it is a test for toxicity. This, so far, is the sole milestone Burzynski has passed. Burzynski’s phase II trials are all “open label”, indicating that there is no control group (which there doesn’t seem to be), so advancement to the next phase is not terribly meaningful (since we have no idea how the Phase II patients would have responded had they not received the drug). In short, the mere existence of the 60 on-going Phase II trials is only evidence that his drugs are not toxic and the mere existence of a Phase III means nothing.
So where is the data for efficacy? Even if the FDA stole patient data, we have no idea what that patient data said. Stolen or not, missing data cannot demonstrate efficacy.
So why is Burzynski doing clinical trials at all? It’s because he can’t dispense non-FDA approved drugs unless they’re part of a clinical trial. For Burzynski, FDA trials are not a mechanism for drug approval, they’re a business model. In legitimate trials, patients are seldom expected to pay, which is why trials are so very, very expensive for drug companies. However, there seems to be no rule preventing the trial clinic from charging patients – who would pay to be part of experiment after all? Burzynski has now turned an expensive endeavor into a profitable endeavor by charging patients for his “experiment”, one which is not recorded and results from which will never be reported. In reality, it’s not an experiment at all, it’s a loophole in the drug laws. You can charge for snake oil if you first write it up as a clinical trial.
After the Marc Stephens debacle (good synopsis here: http://www.popehat.com/2011/12/06/junk-science-and-marketeers-and-legal-threats-oh-my/), the Burzynski Clinic is losing credibility, at long last. Instead of countering his critics with evidence, he hired a thug to “manage his reputation” via threats of legal action. These are not the actions of a legitimate scientist or a legitimate physician.
Given what I’ve just explained, the conclusions are inescapable 1) regardless of the reason, there is no efficacy data 2) Burzynski seems not think he owes patients efficacy data and 3) he’s charging patients tons of money to inject unproven drugs. Bottom line: he’s a fraud. He gives desperate people false hope for profit.
By the way, if “from Oz” indicates that you are somehow associated with Mehmet Oz, your high-profile colleague should have his medical license revoked for promoting this charlatan.
Correction:
The sentence: “The ONLY work which addresses “antineoplaston” efficacy was published in a 2006 Pediatric Drugs paper.”
should read: “The ONLY work which seemingly demonstrates “antineoplaston” efficacy was published in a 2006 Pediatric Drugs paper.”
Parenthetically, Jen McCreight has made some interesting and potentially embarrassing observations about Burzynski’s publication record: http://freethoughtblogs.com/blaghag/2011/11/a-look-at-the-burzynski-clinics-publications/
My friends mom just passed from cancer. I had been reading and searching around for quite sometime. I do designs for a clinical trial company too. I think the strangest part of burzynski is the money. No where have I seen cost associated with the manufacturing of his meds. I know that its big pharm paying people to do clinical trials, but still I would think burzynski would want this approved and mass distributed. It’s like why take a chance at going into a encyclopedia for the wrong reasons. Good luck to any and all in the fight for being healthy.
did the baking soda work for you. please let me know
Do you really think understanding the science of cancer therapy involves simply asking people if something they tried works for them?
People will claim all sorts of things cure cancer. People claim prayer cures cancer, people claim magnet bracelets cure cancer, people claim a raw food diet cures cancer. Anecdotes are meaningless.
If someone takes baking soda and then their cancer goes away it doesn’t mean anything in anecdote form. A certain amount of people will survive cancer no matter what happens, so whatever they take will appear to be a cure if you rely only on anecdote.
That’s why you need scientific studies to distinguish between random chance and actual efficacy.
If you really think baking soda is an effective cure for cancer, why wouldn’t they use that instead of the radiotherapy and chemotherapy which causes many harmful side effects?
Oh I know right, cause the medical industry doesn’t want to cure you, just make money, and there’s no money in baking soda…
Course that explains nations like the UK who have non-profit medicine and still use chemotherapy and radiotherapy.
If you are looking for a cancer cure with no side effects you will be sold snake oil.
If you are not willing to put the effort in to understand what science is and why science works and why anecdotes are not science you’re going to get shitty treatments and your going to die early.
Was true. Is true. Will be true. The naysayers above are simply victims of said priest-kings, whatever they call themselves today.
That’s a perfect summary Don. Our greedy government and medical profession is more interested in profitable treatments than cures, and the patient suffers.
Is it, Rick? Is it a “perfect summary”? Because it seems a lot like paranoid, conspiracy theory summary. Apparently, your definition of “perfect” is the same as the usual definition of “bullshit”.
Crystal, would you. care to clarify who “the naysayers” are? Your statement could be interpreted to support either side of this issue.
Go to burzynskimovie.com for more info and watch the Burzynski movie. It tells the whole story.
Sure seems to be a lot of haters on this site. What is your motivation to discredit Burzynski? At the end of the day, the consumer chooses whether or not to pay for the treatment. How does this affect you in any way at all? If people want to pay $35k to treat themselves of this awful disease, then so be it. If the treatments are not effective as the haters claim, in due time the market (patients) will not buy his product. How many people do you know these days who buy snake oil? None, because those charlatans were called out many years ago. Let the facts play out, stop being jealous and haters.
this is a list of studies from the national cancer institute if anyone actually wants to have a look at these ‘studies’-overall antineoplastons show promise and some cases of complete remission
have a look please
http://www.cancer.gov/cancertopics/pdq/cam/antineoplastons/healthprofessional/page3#Reference3.1
We want my sister to try this but the treatment is so expensive, what is the how much down payment will they take? Then how much monthly? Does anyone know? Thank you!
I have a baby being treated with Antineoplastoms right now. I choose to remain anonymous because I do not want people to bother us or use her as an example. I actually hate seeing threads like this, so i am posting the truth for anyone who cares to read this. The treatments are working for her. Her brain tumor is shrinking and it is stunning. Our options were to do surgery and chemo. Chemo has not proven to work either, surgery would severely limit her. Most chemo doesn’t even penetrate the brain.Then what if the tumor grows back after surgery because they usually do? I have a sick, physically and mentally impaired child with a brain tumor. I had to try this no matter the cost. We only prepared to pay for 2-3 months at first. If the treatment doesn’t work after 2 months then you need to try something else and they will not even let you continue if it’s not working. We are now on 4 months.
You can expect 25,000 – 30,000 the first month. This includes MRI and port surgery which you can get done at home and not have to pay. It also includes seeing a doctor everyday, getting nurse training for about 3 hours a day, and all the supplies. You have to pay for IV bags, tubing, saline flushes, dressing change kits etc… These things are not free and seeing a doctor everyday costs money too. People do not realize how much you are trained and you case is reviewed. It would cost more than that anywhere else. Her brain biopsy and week in the hospital was 3x that.
Now home, we get charged 7600 a month. They billed our insurance but they do not have electronic billing, so the insurance takes forever to build claims. Our actual bill is more than 7600 but that is what we pay. $395 a day for maintenance – doctors review our case and call us daily, plus all the supplies. Antineoplastoms are not charged and they ship them every two weeks. If insurance does not end up paying, we are not responsible for the additional charges. You have to get MRIs every 6-8 weeks and have a local doctor that agrees to help you. He/she has to give you an evaluation visit and reports to the clinic once a month, you never need to return to the clinic. We have several doctors and nurses helping us. Lots of people are involved in our baby’s care. We have regular blood tests and do our visits to make sure she is healthy and can stay on treatment .
When the tumor is gone, complete response, they keep you on a lighter dose that includes the oral PB for 8 months because they say 8 months seems to be the appropriate amount of time for the tumor to not come back.
IV Antineoplastons are for brain tumors. Oral PB and sometimes tiny doses of chemo are used for other cancers. Both of these treatments work to make cells and genes do what they are supposed to do without killing good healthy ones. If your gene is covered in the Antineoplastons, you are very fortunate. Sometimes brain stem tumors are too tricky to treat because the ANP makes the tumor swell a little before it starts to shed cells, that’s another reason why not everyone can use it. The brain stem can’t always take anymore swelling. I made a friend while I was at the clinic. We kept in touch after we left. She was put on PB for lymphoma and her cancer was gone in 4 weeks. She had a little bit of diarrhea as her only side effect, but maybe that was all the Mexican food, who knows but it sure beats chemo. IV Antineoplaston side effects are extreme thirst and tiredness. My baby drinks about a liter of water a day. The tiredness adjusted after a day or two and she just takes an extra hour nap. It is not an easy treatment, it is constant and rigorous. We are tired and always wondering what she is feeling. We are so glad she is not suffering the ill effects of chemo and surgery. I wish this treatment could be tried by all these kids with brain tumors. They deserve the chance to at least try what won’t hurt them first before treatments that do hurt them. I’m actually pretty mad it’s not available to everyone. I know it can’t always work because maybe someone needs surgery right away or the genes are not covered by the ANP, but everyone deserves a chance to try it. Some day I will have a louder voice on this, but right now I just want my baby to be cured and that is what I’m focusing on.
If you want to write negative posts about how Dr. Burzynski can’t prove anything, show me proof that chemo and radiation work because all I see is proof that they cure nothing and mess people up. It is all a big experiment aka clinical trial. Do not judge someone for thinking outside the box. Until you, or God forbid your child, is suffering from cancer do not make judgements on people looking for alternative treatments. I don’t care how much it costs out of pocket- it’s actually cheaper than modern medicine. It is worth the risk if you have a month or two to try it.
Sorry for all the typos, I’m using a phone to post. Bottom line, my baby is so healthy and happy you would never know she had a tumor if you did not see her hooked up to her pump. She could be partially paralyzed from surgery and deathly sick from chemo if we would not have known about the Burzynski Clinic. I know we are not out of this fight yet, but we are so happy we were able to try Antineoplastons.
One more thing to add… The Burzynski clinic is curing my daughter so you know I am a believer. But, if I’m diagnosed with cancer tomorrow, he will not treat me because of the FDA. I would have to use traditional medicine first, have it fail, then the FDA would allow me to have Dr. Burzynski treat me. This is so wrong!!
We are obviously losing ground with conventional cancer treatment, because the death rates keep going up. The reason for this is because conventional treatment is based on a faulty standard: That the body must be purged of cancer by aggressive and toxic methods such as surgery chemotherapy and radiation therapy. This, of course, seemed reasonable back in 1894 when William Halsted, M.D. did the first radical mastectomy, but it has proven to be so wrong over the last 50 years that continuing to adhere to it constitutes more fraud than honest mistake. However, this standard still dominates conventional cancer therapy, and until that changes, we will continue to lose ground with cancer.
Dr. Whitaker, a firm believer in Dr. Moss’ work and alternative cancer therapy goes on to give some of his personal views:
Statistics Don’t Tell the Real Story
What is lost in the unemotional statistic of 500,000 cancer deaths per year is how those people died. Dr. Whitaker goes on to say more about the treatment of cancer: In my opinion, conventional cancer therapy is so toxic and dehumanizing that I fear it far more than I fear death from cancer. We know that conventional therapy doesn’t work — if it did, you would not fear cancer any more than you fear pneumonia. It is the utter lack of certainty as to the outcome of conventional treatment that virtually screams for more freedom of choice in the area of cancer therapy. Yet most so-called alternative therapies regardless of potential or proven benefit, are outlawed, which forces patients to submit to the failures that we know don’t work, because there’s no other choice.
There’s a whole lot of internet shills going on here. I would not worry much about the so called “doctors” who make posts here. I mean what doctor goes out of their way to make a such an elaborate post, if you want to call it elaborate. Most shill agencies are given various writings with which to reference via their employers or use in house stock writings if none are supplied. But given the fact that billions of dollars and thousands of jobs on the line, you can bet your ass they are going to hire the best and use the most shady of practices to try and suppress anything by Doctor Burzynski and his associates.
Those who control the flow of medicine are very threatened by this doctor. Big Pharama could stand to lose billions of dollars if any of the cures locked away make it into the world. But they failed to properly lock Burzynskis work away and now have to fight hard to keep it suppressed.
This site is really great due to the relevant content and knowledge about the topics which this site is covering thanks for sharing such nice things keep blogging.
One thing i think the video demonstrates is that its indeed money that rules this world of medicines. Because the big pharmaceutical companies finance the experiments of the medicines they themselves are interested in selling (and thereby ofcourse also running the risk of investing in less effective medicines), they are not interested in sponsoring research into a medicine to which someone else (dr Burzynski in this case) holds the patents. Why would a commercial company? But in this case even worse, if the medicine indeed works as good as claimed, it would put their profit with the current medicines at risk. Its simple logic and one that compells to listen.
And there is where it starts to get frustrating. Because I just dont know if the story is true or not. I think nobody not directly related can judge on that, based on some internetblogs and articles. You only make your estimation based on the behaviour of the people involved/credibility of arguments. But are the patients testimonies real? Who makes the selection of these testimonies? Why would the FDA go so hard in court for a medicine they themselves declare is not harmfull? Why in gods name is it obligated to pay the FDA for their work of judging? Why did the former colleage try to get the patents, why would the cancer insitution indorse this? Why isn’t the drug tested abroad, where the influence of the FDA is supposed to be less? When Burzynski talks of thousands of patient dossiers being taken, how come his so far published studies contain not even a fragment of that amount of patients?
The possibility of this story being true makes my blood boil, and yet there is no way to check anything, because there is no substantial evidence (really small amount of patients) in the scientific database at my disposal (pubmed). Is the publication of these articles being blocked? The problem is also that the credibility of an author in the medical field is much less if there are no other doctors quoting this doctor and also if the stature of the magazines in which the articles are published is not very high. I mean, the results are in not very good magazines and practically all of the references are to his own work. In the traditional way of looking at the quality of a medical article this has not a lot of credibility, but how open is this traditional way of looking for completely new approaches to medicine? An approach that doesnt allow you to quote twenty other doctors, because its discovery isn’t the result of a slowly built model, but rather a leap.
I really hope more studyresults come in, so I can at least, on a medical level, judge what i believe about this medicine.
This doctors’s story is almost identical to Dr Gerson’s therapy for cancer. Due to persecution here Dr Gerson eventually moved his clinics to Mexico. And I think there is a clinic in europe. His cure was basically through a diet of pure super concentrated veggie drinks. NETFLix has a lot of similar documentaries where the BIG PHARM fights for or against “medicine” of course based on their profit in it- and the people on all these governing boards are in bed with each other. There is a documentary of the harm that prozac has done to many people’s lives but it has full FDA approval. Because those who approved it received big thanks from the Pharm co they also work for.
“Phase I & II trial results far superior to the comparator chemo & radiation trials.”
I’m sorry,but given that Burzysnki has never released the results of ANY of the 60-plus phase II clinical trials he claims to have conducted over the past several decades, this statement simply isn’t credible.
“How much more do want?”
Well, actual evidence antineoplastins are safe and effective at treating cancer would be nice. Releasing the results of all those clinical trials would be a good start.
It’s really pretty simple–either Burzynski studies do not represent proof that antieolastins work, or they do prove they work but he’s unwilling to share that proof with the greater medical establishment in order to maintain his monopoly on the treatment and line his own pockets,depriving anyone who can’t pay tens of thousands of dollars access to a cure for their cancer.
So which do you think it is? Is Burzynskia fraud, or a monster?
Who owns and runs the NCI.? What affiliation does dr B have with the NCI?
In PJ’s comment, he hopes for more patient study results to come in so he can judge the merits on a medical level to convince him of Antineoplaston validation abroad. Here is something I can add to inspire his belief in Burzynski’s treatment.
Antineoplastions has been evaluated via an ‘Executive Summary’ (ES) presented to the Australian Federal Government Therapeutical Goods Administration (TGA), the equivalent to FDA in the US, and given the ‘Green Light’ to lodge an NDA for Clinical Trials in Australia.
To receive a green light from the TGA, is no walk in the park, the ES has to contain all the scientific data and patient response to ANP treatment. In other words, the real deal.
There is a website put up by an Australian patient of Burzynski’s (www.shontellehiron.com) that tells it how it is, and gives you an insight as to what Australian medical professionals consider about the efficacy of Antineoplaston back in 1995.
There is also a facebook site Australians Behind Burzynski.
Sir,
If I had ten cents left after my wife passed from breast cancer it would be yours. Our Champ VA insurance paid all but 3 grand but would not pay for anything “unapproved” or untested. I am so grateful to Champ VA for NEVER quibbling with repeated requests for Pet Scan.
Yet I know my dear bride of 40 years would be alive today had she not been hooked up to those poisons to be sent into a downward spiral that ended any chance to be healthy enough should a suitable treatment been found.
I too called the Bursynski clinic and was summarily cut off from further contact when I told them I had Champ VA insurance. My repeated attempts to tell them I had property to sell and friend to tap only got me more hang ups and unreturned calls.
I know ALL cancer clinics operate that way. The only reason they do not appear as callous as Burzynski is that they use conventional poisons that are covered and have the luxury of taking your insurance card – knowing full well all or most of it will be paid.
As for taking the conventional courses of treatment….you are damned if you don’t and damned if you do. Families are cruel. If a loved one survives 3 years doing nothing…the spouse who encouraged the patient to go for the quality of life will be castigated and hated for not giving her a chance to live forever….had she taken the poison road.
It is a vicious world we live in.
Good luck. Please take your own counsel and tell the rest of them to drop dead!
Paul
Do you really think medical frauds no longer exist? Consider for just a second that Burzynski is a fraud, and that he’s peddling placebos or whatever. Just consider it for a second. The Burzynski you’re imagining is then charging $100,000 for a year of ineffective treatment. It’s fairly binary, isn’t it? If his drugs work, he’s a tormented hero, and if they don’t work it means he’s preying on sick and desperate people. Don’t you think his patients, who pay so much money in a desperate attempt not to die, are owed a modicum of proof that he is the hero he claims to be? In the last 40 years, I would think he’d have sufficient data to satisfy the FDA. But he hasn’t, and the most likely reason, given the dearth of data he’s published already, is that they’re just not effective. I care because people drive their own families to ruin, just to pay For Burzynski’s mansion and, as someone who can understand primary science literature, I feel a duty to speak up, since voices like mine are the only opposition to frauds like Burzynski. For him, clinical trials are just a way to make a ton of money from dispensing ineffective and non-approved drugs.. And no, no one I know has ever been defrauded by him or anyone like him. I’m just a guy who thinks the sick and desperate should be protected from parasites like Stanislaw Burzynski.
Don’t you think the simpler explanation is just that antineoplastons don’t work? Instead of this huge conspiracy where the drug companies and the FDA are trying to suppress a brilliant man’s invention, don’t you think it’s more plausible that antineoplastons are just a bad drug that a guy invested too much in, and he’s afraid his career would mean nothing if their true clinical utility was discovered. I don’t care if you think I’m a shill for your b
…ig conspiracy theory. I just hope others who read this will do their own research and see that there are reasons to think that Burzynski is not a hero.
Excuse me all “fraud” and “snakeoil” claimsters out there. You idiots do realize that IV antineoplaston treatment is in Phase IV clinical trials with the FDA, correct?
MEANING THAT THE FDA HAS CONCEDED THEIR EFFICACY. The crusade against Burzynski has been never-ending. God bless him for having the fortitude to fight against all the clowns in medicine these days.
Here’s my question. Modern medicine says your child is going to die, nothing we can do. EVERYONE admits that Burzynski’s treatment is not harmful.
THEN WHY CAN’T THE GOVERNMENT GET OUT OF THE WAY and let parents try to save their children any way possible. To do otherwise is criminal and the feds have BEEN BEYOND criminal here and should be tarred and feathered.
“You idiots do realize that IV antineoplaston treatment is in Phase IV clinical trials with the FDA, correct?”
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Phase III, actually. Phase IV trials happen after a drug is FDA-approved. Antineoplastons will probably never enter Phase IV trial because SB probably won’t ever be able to prove they are effective against cancer, so they will never be approved. And Stanislaw Burzynski know that, but in the meantime, he wants to profit from giving false hope to sick and dying.
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“MEANING THAT THE FDA HAS CONCEDED THEIR EFFICACY.”
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No, they haven’t, and no, it very much doesn’t mean that. If his drugs WERE in phase IV trials it would mean the FDA has recognized their utility, of course. There are other posts here explaining as much – you should read them before you call people idiots.
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The crusade against Burzynski has been never-ending.
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It’s because Stanislaw Burzynski has evaded his burden of proof shared by all pharmaceutical companies like his. And yes, he owns a pharmaceutical company.
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“EVERYONE admits that Burzynski’s treatment is not harmful.”
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You seem to have been misinformed yet again. Antineoplaston formulations actually have quite a bit of sodium, whish has cause problems in patients.
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“THEN WHY CAN’T THE GOVERNMENT GET OUT OF THE WAY and let parents try to save their children any way possible.”
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The Food, Drug and Cosmetic Act of 1938 is your answer. The FDA is mandated by the Food, Drug and Cosmetic Act of 1938 to “protect the pocketbooks of consumers” by ensuring that worthless drugs cannot be sold. Here, the FDA has not upheld it’s mandate, in fact. Stanislaw Burzynski is a cancer profiteer who continues to legally sell unproven drugs. If you want the government to ‘get out of the way’, you should petition your congressmen to overturn the Foof, Drug and Cosmetic Act of 1938.
“…they are not interested in sponsoring research into a medicine to which someone else (dr Burzynski in this case) holds the patents.”
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SB is cleared to do the trials. And, despite that his house is worth $6M, he’s charging patients to participate in those trials. Why would he need a sponsor if he’s cleared for the trials and his patients are funding the trials?
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“But are the patients testimonies real? Who makes the selection of these testimonies?”
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SB does, since SB commissioned the movie.
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Why in gods name is it obligated to pay the FDA for their work of judging?”
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That’s how it works – you pay the FDA to evaluate your claim. The payoff is huge – if your drug passes, you get to market it, and insurance companies will start paying for it. It’s like asking why we have to pay for college. It’s because it costs money to evaluate, and someone has to pay. It’s an investment that pays off, if you pass the evaluations.
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“When Burzynski talks of thousands of patient dossiers being taken, how come his so far published studies contain not even a fragment of that amount of patients?”
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It’s because he’s not performing a clinical trial. He’s found a way to dispense worthless drugs without FDA clearing the drug for general use. The movie is ridiculous – it’s meant to distract you from the real problem, which is that SB has had 40 years to demonstrate that antineoplastons work. He has been given permission to do so by the FDA. His patients are expected to pay for their own care out of pocket, providing the funding for the trial. SB is also making a handsome profit, apparent in that he owns a $6M home. You should be frustrated, but this has been going on for decades. SB has the resources and ample opportunity to demonstrate that antineoplastons work. But he hasn’t done it. Instead, he pleads his case in appeals to emotion and anecdotes in feature-length infomercials that he, himself has funded. But it’s a distraction. He’s buying time. As long as he maintains some doubt that he is a cancer profiteer, uninformed people will support him and he’ll continue to prey off on the desperately sick by giving them false hope. He is very smart, but it’s not because he invented something useful, it’s because he’s been able to make so much money from what is probably a useless invention without ever having to prove that it works.
I posted this way down at the bottom, but it was supposed to be a reply to you, PJ:
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“…they are not interested in sponsoring research into a medicine to which someone else (dr Burzynski in this case) holds the patents.”
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SB is cleared to do the trials. And, despite that his house is worth $6M, he’s charging patients to participate in those trials. Why would he need a sponsor if he’s cleared for the trials and his patients are funding the trials?
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“But are the patients testimonies real? Who makes the selection of these testimonies?”
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SB does, since SB commissioned the movie.
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Why in gods name is it obligated to pay the FDA for their work of judging?”
–
That’s how it works – you pay the FDA to evaluate your claim. The payoff is huge – if your drug passes, you get to market it, and insurance companies will start paying for it. It’s like asking why we have to pay for college. It’s because it costs money to evaluate, and someone has to pay. It’s an investment that pays off, if you pass the evaluations.
–
“When Burzynski talks of thousands of patient dossiers being taken, how come his so far published studies contain not even a fragment of that amount of patients?”
–
It’s because he’s not performing a clinical trial. He’s found a way to dispense worthless drugs without FDA clearing the drug for general use. The movie is ridiculous – it’s meant to distract you from the real problem, which is that SB has had 40 years to demonstrate that antineoplastons work. He has been given permission to do so by the FDA. His patients are expected to pay for their own care out of pocket, providing the funding for the trial. SB is also making a handsome profit, apparent in that he owns a $6M home. You should be frustrated, but this has been going on for decades. SB has the resources and ample opportunity to demonstrate that antineoplastons work. But he hasn’t done it. Instead, he pleads his case in appeals to emotion and anecdotes in feature-length infomercials that he, himself has funded. But it’s a distraction. He’s buying time. As long as he maintains some doubt that he is a cancer profiteer, uninformed people will support him and he’ll continue to prey off on the desperately sick by giving them false hope. He is very smart, but it’s not because he invented something useful, it’s because he’s been able to make so much money from what is probably a useless invention without ever having to prove that it works.
PJ – I’d like to put a finer point on a statement I made in my response to you: SB will invest in two feature-length infomercial advertising his clinic, but he won’t pay for his clinical trial patients’ care (despite that this is what is usually done), and he hasn’t made it a priority to publish any data redeeming antineoplastons. I think we have enough information to say that SB’s priority is his own quack medical practice and not the well-being of his patients.
I thought I’d just add in my own two cents. There’s not a whole lot to say that hasn’t been covered elsewhere. My mother was a Burzynski patient – she had stage IV colon cancer. The staff was inept, the treatment they prescribed was no different than what any other oncology department had prescribed (except for the $4,000 monthly Sodium Pb, availably only from Burzynski by the way), our doctor was cold and unresponsive, and our most meaningful relationship was with the billing department.
Unless you have brain glioma (the only demonstrated area of success at Burzynski), or you have unlimited money and don’t care that insurance doesn’t cover treatment, don’t go here.
John, where has Burzynski published results demonstrating his clinic acheives better outcomes when treating brain gliomas than can be acheived with conventional standard-of-care treatment?
“I say this based on a gestalt of impressions formed while going through the process”
Bwaahaahahaa. This Dr. B is making cash off of gestalts of impressions in the minds of morons. The American Dream (a lie, of course).
Hello, Woody. Glad to have you contributing…. Since you seem to have a strong opinion about the observational conclusions of others, I’m certain you have hard evidence to support your belief that you know more than others. I’m listening to hear what you have to provide to the conversation….. as are others who are trying to decide what to do after figuring out their disease is terminal….. Hopefully you wo n’t waste our time with a rehashing of current dogma… . Which could be true, I guess. But doesn’t match what I observed….
I just need a definite answer if to take my mom for this treatment or not.Someone tell me wat or who is SB. Why cant she be placed on the antineoplastons right a way? wat qualifies her to be in the clinical trials?
Hi, nice page but there is a issue whereby on occassion I get sent back to the base page whenever I look at other pages within this blog.
Wow, after watching the dr b movie, I was getting excited for a chance at treatment for my stage 4 pancreatic cancer, metastized to my liver. UCSF, & my local doctors say there is nothing…other than cemo drugs that might extend my life a few months. There are so so many claims, Dr. Budwig , simpson oil, baking soda/ ph. Ect.ect. in doing extensive (internet) research, I find that most protocols conflict with each other. The consistent truths seem to be eating healthy, & that our government, medical society, & big pharm. can not afford to allow a cure for cancer. I have had a whipple procedure, prostate removal, & two hernia surgerys in the last 36 months. At 51 yrs old, I am not ready to give up. After reading this blog, my excitement has diminished. Please think long & hard before posting negative feedback on this or any other site, as a positive attitude may be the only chance some of us have.
Hello, Tony D.
Sorry if this response is late…
I know the responses on the site can be negative, but I have promised myself to provide a forum for all points of view.
BUT, most importantly, I want to advise you that the remedies that I have posted on my website are ones that I believe work for some people regardless what the mainstream medicine people say.
That said, if I were you I would immediately start on a low dose naltrexone and alpha lipoic acid regimen to try to buy yourself time… or better.
I must – as always – preface what I am saying with the disclaimer that I am a pharmacist, not a physician and/or cancer doc.
I believe that the low dose naltrexone and alpha lipoic acid regimen that is followed by dr Burt Berkson in New Mexico has a much better chance of helping you than Dr Burzynski.
If you can’t find someone who can tell you how to mix stuff etc… wherever you live drop me a line. I can tell you how I would do it…
Anyway, there is absolutely NO doubt in my mind that I would immediately start the protocol that he presents the results of in the links located on one of the low dose naltrexone posts on http://www.thatcrazypharmacist.com.
In fact, I have cut and pasted info from an e-mail to a friend that gives the links below. Watch the at least the first two videos before you make up your mind that there is no hope for you…
I hope this helps you. Do NOT give up hope. Do NOT stop fighting.
Steve Mitchell, RPh (aka ThatCrazyPharmacist)
http://thatcrazypharmacist.com/?p=446 web page – overview introduction to low dose naltrexone with alpha lipoic acid therapy
video 1 – http://glasgowldn2009.com/2009/04/ldn-conference-video3/ Case studies – PET Scans, pt histories, results
video 2 – http://glasgowldn2009.com/2009/04/ldn-conference-presentation-video4/ Talks about how to implement
video 3 – http://glasgowldn2009.com/2009/05/european-ldn-conference-video1/ Pharmacist talking about her use of LDN
interview link – Dr Burt Burkson talking about how he got involved with alpha lipoic acid therapy
http://www.prescription2000.com/Staying-Healthy-Today-Radio-Interviews/2010-01-22-burt-berkson-lipoic-acid-naltrexone.html
web page link – http://thatcrazypharmacist.com/?p=497 history of Dr Bihari’s use of Low Dose Naltrexone to treat patients
web page link – http://thatcrazypharmacist.com/?p=509 kind of a collection of information about the use of low dose naltrexone to treat MS, history, collaborating links to books and studies, etc….